Longread #331 -- The Girl Who Turned to Bone -- 6/12/13

This is another incredible medical story. It focuses on a rare disease (fibrodysplasia ossificans progressiva) and the efforts to better understand and address the disease. It also uses this case as a lens into the general difficulty in studying rare diseases.

"The Girl Who Turned to Bone" by Carl Zimmer
Published in the Atlantic, May 22, 2013

Eric